We had another Milwaukee Monday yesterday! We haven't been down to Children's Hospital for six months. It was nice to have such a long break and a healthy little boy for a while!
We had a long day of appointments: 9:00 CT scan, 11:00 meeting with craniofacial, and a 2:00 re-check with the eye doctor. First, Brode wanted nothing to do with the CT scan. The entire process lasts 5 minutes if he sits on the table still an quiet but he chose to wiggle so we had to go with sedation again and we were there for an hour and a half. Once we were finished we got our starving child some breakfast before his appointment.
Our meeing with Dr. Denny went wonderfully! Brode jabbered away to the nurse who gave him a big stuffed Eeyore, stickers and a sucker then the doctors came in. We looked at his CT results that were perfect and talked about the future! All of the bone grafts held tremendously and there are no soft spot concerns. The symmetry also held and if his bone all grows proportionally for the rest of his life it will keep same shape and there will be no further concerns! Dr. Denny will see Brode once a year to monitor that shape and make sure nothing alarming is taking place that we need to address.
As for the eye doctor, we had a bit of a different meeting. We ended up getting the appoinment mved up to 12:30 so we didn't need to spend all afternoon there and luckily it was right as the doctor was returning from lunch we got right in, bypassing all of the tech's measurements. The doctor examined his tracking and started doing measurements of his vision (what we have been waiting for Brode to be old enough to do). Brode did great identifying and matching letters with both eyes and with his left eye, but when forced to only look out of his right eye he wasn't able to identify or match any of the letters. In order to strengthen this right eye we're going to patch his left fa few hours a day for two months, then readdress the problem and see if w can move on to the tracking issue!
I know, I know, it's never ending. Brode's head has never bothered me once, I'm com fortable doing what is best for him. The eyes on the other hand just make me feel horrible. Starting with the glasses and now patching, I feel so bad for him. I imagine myself looking at little kids with a patched eye and wondering what is going on with them, and I don't want Brode to be that little boy. As we were driving home all I could think was I hope all the little kids at day care will leave Brode alone when he is wearing the patch, but also that I hope he is small enough that he won't remember and I would rather worry and hurt for him now and he will be better off when he is older. I know the two months will go fast, but I really hope the whole process works and we don't need to go back to the glasses.
Overall it was a good day, we got a lot of good news and Brode is completely still on a track of being a normal little boy like everyone else! Our doctor reassured us he is ahead of the game, he doesn't need to be held back and treated any safer, and if he breaks something we have his number - use it!
(Sorry for no pictures, the camera doesnt usually come with us to the hospital! Disney pictures and posts soon though!)
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