Thursday, June 28, 2012

Milwaukee Monday

ANOTHER Milwaukee Monday! You may remember a post a while back about having a Tuesday appointment and I was all thrown off.... whew, we're back to Milwaukee Monday's.

Brode was scheduled for his 1 year check up with his craniofacial surgeon and it fell at the same time as the 1 month post-op check for his eyes. LOVE when that happens!

We were to report to radiology by 9:00AM, that craniofacial clinic by 11:00AM, and the eye clinic at 12:45PM. LONG day.

Brode did GREAT! First off at 9:00 he had a CT scan to re-check the alignment and holes/bone growth in his skull. There are 2 options with a CT scan - not moving (5 minutes), or being sedated (1 hour - 1.5 hours and a whole lot of frustration with an IV). Well good thing we brought Grandpa because Brode sat perfectly still and we were able to get in and out of the scan with no moving. Beforehand we talked about taking pictures, showed him pictures of the "big donut" (scanner), and told him it wouldn't hurt at all. He was a bit hesitant but after a few minutes of talking and looking around and practicing he let them strap him down, hold Grandpa's hand and they scanned him quickly. We were all so proud of him and extremely thankful we didn't need to do the sedation.

At his 11:00 appointment we were able to look at the scans right away and discuss with his doctor. Everything is looking great for a year. He has a few holes, but nothing alarming. His eye has dropped off and his nose is sideways, both things that they can fix in the future, but nothing we're looking into. It would be too much pain for the small outcome. We will just keep them in mind for future if he struggles with his looks.

Lastly, after a long wait and exploring adventure, we had the eye re-check after surgery. The tracking looks great from the surgery and his vision hasn't changed. We're down to patching for 1 hour a day to work down to none and getting rid of the patches as they do not think the vision will change any more than it has.

The best news of the day, we go back to the eye doctor in 6 months and the craniofacial clinic in 1 year. Those are great stretches of time as we were doing at about every 3 months or less lately.

As if the day wasn't long enough, we made an afternoon trip to the Milwaukee Zoo!



 All of the animals were pretty active except this guy.




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